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  3. Rose

    Get Ahead of Hair Loss

    Get Ahead of Hair Loss (GAoHL) is an initiative created to address the need for an annual, public educational event on the common causes of hair loss and raise awareness of the impact it can have on people and their quality of life. It's founder, Dr Sharon Wong, is a member of the British Hair and Nail Society. Please encourage your patients to attend if you think it would be of benefit to them. There is currently a promotional £10 off entry with promo code: HA1R2019 Where: 1 Wimpole Street, London W1G 0AE When: 22 September 2019, 9.30am-6.30pm Programme: https://www.getaheadofhairloss.com/copy-of-programme Website: https://www.getaheadofhairloss.com/ GAoHL_emailer (2).pdf
  4. Rose

    IMG-20190427-WA0013 (1)

    BHNS Members at the World Congress on Hair Research 2019
  5. Scientists identify genetic locations implicated in development of frontal fibrosing alopecia. http://www.guysandstthomasbrc.nihr.ac.uk/2019/03/08/scientists-identify-genetic-locations-implicated-in-development-of-frontal-fibrosing-alopecia/
  6. British Hair & Nail Society - Nail Educational SessionDate: 19th September 2019 Venue: The Queens Hotel, Cheltenham (19th September 2019) Organiser: Conference & Event Services from the BAD Email: conference@bad.org.uk To be added to the interested list please email conference@bad.org.uk The program can be downloaded here: BHNS 2019 (3).pdf
  7. Many of you will have been to an evidence-based update meeting organised by the Centre of Evidence-Based Dermatology at Nottingham where new evidence from systematic reviews and clinical trials are presented along with an expert panel involving clinicians, patients and methodologists. One unique feature of the meeting is that the topic for the next meeting is chosen by the delegates. The chosen topic for 2019 is hair disorders and topics will include an update on treatments for alopecia areata including JAK inhibitors. The meeting is being organised by the CEBD team led by Professor Hywel Williams in collaboration with the British Hair and Nail Society. So please save the date and do check the CEBD website as registration will open in November 2019. The meeting is usually fully booked, so please do not leave it until the last minute. For further information, please contact Maggie McPhee margaret.mcphee@nottingham.ac.uk and check the CEBD website https://www.nottingham.ac.uk/conference/fac-mhs/medicine/evidence-based-update-meeting/ "
  8. Patient and Public Involvement and Engagement (PPIE) are increasingly viewed as a vital component of any research proposal. These not only inform us of the feasibility of a study but also ensure the research we do is relevant and important to our patients. On the 23rd June we hosted a PPIE event in Manchester called “All about Alopecia” funded by the University of Manchester’s BRC funding programme and supported by Alopecia UK. This eventful and productive meeting brought together clinicians, researchers and people with various types of alopecia in a free day event. Information giving and gathering was shared in a variety of settings running in parallel, including a rolling programme of interactive talks, focus group work, a mindfulness session, an art project and a central “market place”. Two workshops ran throughout the day (“ETAAP” (Early Treatment for AA Prevention) and “ROMA” (Refining Outcome Measures in AA)) that will hopefully help improve trial design for future studies. The market place was a popular component of the day allowing people with hair loss to speak with researchers and clinicians and take part in a number of activities, including feasibility of self-SALT scoring and rating the recent hair loss PSP outcomes. Stalls included a clinical and research area to discuss previous and current studies, patient representatives to chat and shared tips on hair makeup techniques and stalls from TRENDCO (local wig provider) and MASUMI head wear where they showcased their products and offered advice. Alopecia UK kindly supported the event and sent members of their team. We particularly thank members of the BHNS who gave up their time to support the day, including Susan Holmes, Abby MacBeth (and the ROMA study group) and Andrew Messenger. The day ended with a prize draw with the first prize winner leaving with an Amazon Echo. Feedback from the day was generally very positive. For many in attendance this was the first time they had spoken with other people with hair loss in a safe non-threatening environment. Will we do it again? Yes – probably, but not for a couple of years to give us chance to recover! Caroline White Matthew Harries Manchester (August 2018)
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